Introducing the Administrative Data Research Network. Melanie Wright Administrative Data Service

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Transcription:

Introducing the Administrative Data Research Network Melanie Wright Administrative Data Service

Our Structure Four Administrative Data Research Centres (ADRCs), one in each UK country England led by University of Southampton Northern Ireland led by Queens Uni Belfast Scotland led by University of Edinburgh Wales led by Swansea University Coordinating Administrative Data Service (ADS) led by University of Essex

About ADS Who We Are Partnership UK Data Service (Essex) Administrative Data Liaison Service (Mancs, Oxford) Five main teams: User Services (Essex) Comms & Stakeholder Engagement (Essex) Training and Capacity Building (Manchester) Legal Guidance (Oxford) Management and coordination (Essex)

About ADS What We Do Coordinate activities across the Network Facilitate internal working groups Keeper of ADRN-wide Comms and PubEng strategies Act as the front door to the Network Website, branding, data catalogue, guides Help Desk Advice on legal issues Oversee/track the User Journey Assist in project proposal preparation User accreditation and training Negotiate with data owners for access to data Administer Approvals Panel, Expert Advisory Groups Track impact Develop network-wide standards and protocols

About ADRC-England Led by the University of Southampton and run in collaboration with University College London The London School of Hygiene and Tropical Medicine The Institute for Fiscal Studies The Institute for Education The Office for National Statistics Director: Peter Smith (UoS) Deputy Directors: Dave Martin (UoS), Ruth Gilbert (UCL) and Ben Humberstone (ONS) Assistant Director (Operations): Emma White (UoS)

ADRC-E Infrastructure Secure research laboratories in Southampton and London for the analysis of de-identified linked administrative data Access to the Office for National Statistics Virtual Microdata Laboratory Remote access to secure servers at Southampton Staff to support researchers using ADRC-E facilities A team of academics providing advice and leading coordinated research programmes Programme of user outreach and training on the use of administrative data

The Administrative Data Research Centre - Northern Ireland Linkage service Safe setting Data acquisition Public engagement Training, capacity building Research Researcher support

ADRC-Scotland Co-located with Farr Institute, Scottish Government and NHS. Universities of Aberdeen, Dundee, Edinburgh, Glasgow, Herriot-Watt, St Andrews and Stirling. Expertise in admin. data and Public Engagement, linkage, Law and relevant computer science techniques.

About ADRC-W Collaboration between Swansea and Cardiff Universities, with committed co-applicants from across Wales. Breadth of expertise across social sciences and health Unique data resources and research interests from Welsh Government partners Director: DV Ford. Assoc. Directors: K. Jones (data and methods; R Davies (user support). Programme Manager: J Smart.

ADRC-Wales located in a purpose-built Data Science building, funded by ESRC, MRC & Welsh Government High security data lab and server farm, with linked node in Cardiff Co-location with Farr Institute Centre, NHS and Welsh Government Data Scientists Security designed-in from the beginning Privacy protection and information governance from the foundations up. Sharing best practice, collaborating on shared problems

How It Works Website front door Catalogue of metadata Guidance on legal responsibilities, gateways Good practice guides Application support

Researcher Administrative requests Data administrative held by Data Custodians data for a project NHS Data John Smith DOB 30/04/72 NHS No Gender Age Unique Code Researcher applies 567899 via ADS HMRC Data Jon Smith DOB 30/04/72 HMRC No Gender Age Unique Code 1234567 NHS Data Unique Research Codes data are is sent given by the to data ADRCs custodians Injuries Allergies ADS Births submits proposal Unique portfolio Codes and personal information 567899 to Approval are sent to a Approval Trusted Panel Third considers Party Trusted Panel Third party to be merits and risks of project matched HMRC Data Tax Income Pension Employment Researcher to be approved and trained Unique Code 1234567 If approved ADRN negotiate with Data Custodians Click

ADRC Research, Linking final checks of matched and approval data Injuries Allergies Births NHS Data Unique Code Researcher 567899 provides results for further checks Unique Code 1234567 HMRC Data Tax Income Pension Employment ADRC Unique checks to Code ensure results do 567899 not include Researcher information is that able would to access identify data an securely individual Unique Code 1234567 Records from two sources match! Findings published Trusted and Third summary Party of the work is Data has been released matched for and only the general unique codes are consumption sent to the ADRC The research can now be used to influence policy and benefit society

Our Governance and Oversight ADRN Board convened by UK Statistics Authority reports to Parliament Management Committee convened by ESRC reports to BIS Approvals Panel of independent experts Expert Scientific Advisory groups

Our Mission and Vision To benefit society and quality of life through intelligent social research To place the UK at the forefront of innovative social and economic research