Services to support the co-creative patient in the Nordic Countries Joint session by ALEC2014 and Nordic Telemedicine Association (NTA) Introduction by Jarmo Reponen, Professor of Healthcare Information Systems, Univ. of Oulu, Finland
Background of Nordic ehealth collaboration First Nordic telemedicine project was in 1993 1995, teleradiology between Oulu, Reykjavik, Tromsoe. Teleradiology/telemedicine conferences arranged by Swedish SPRI in early 1990 ties. 1996 First Nordic Conference for Telemedicine in Finland 1998 Nordic Council of Ministers financed Dr Thomas Steengard from Grönland to write a Report of telemedicine in the Nordic Countries
Formal establishment and early actitivities 1999 Nordic Telemedicine Association was founded 7.9.1999 in Ilulissat in Grönland as a federation of the national telemedicine associations and respective organisations. NTA is officially registrated body under Norwegian law. Published reports about telemedicine in the Nordic Countries and use of e-mail in patient contacts. NordUnet collaboration, consulting the use of wideband network in telemedicine, evaluator of research projects. Newsletter, Website http://nordictelemed.org Initiative Nordisk Hälsonet -> Baltic ehealth -> other projects, e.g. in EU-level.
Nordic Conferences 1996, Kuopio, FIN 1998, Reykjavik, ISL 2000, Copenhagen, DEN 2002, Tromsoe, NOR 2004, Umeå, SWE 2006, Helsinki, FIN 2008, Copenhagen, DEN (session at WoHIT) Since 2010 no formal Nordic conferences on ehealth/telemedicine National conferences in Finland, Denmark, Norway and Sweden have regularly Nordic guest speakers. Nordic Theme sessions. (e.g. in WoHIT, HIMMS)
ehealth in Nordic countries today (15 yrs later) ehealth is strongly supported in national health strategies. Ministerial level meetings. Nordic countries are leading countries in Europe, in terms of ehealth service availability (EU surveys 2008 and 2011). Strong adherence to standards, public funding and centralized governance.
Nordic ehealth Research Network, NeRN Established in 2012. Financed partly by Nordic Council of Ministers. Close collaboration with OECD ehealth indicator work. Compare policies, develop joint indicators. First report shows more similarities than differences in the ehealth policies and priorities. The results will create a basis for evidence-based policy making as well as benchmarking and learning best practices from each other. Hannele Hyppönen, Arild Faxvaag, Heidi Gilstad, Gudrun Audur Hardardottir, Lars Jerlvall, Maarit Kangas, Sabine Koch, Christian Nøhr, Thomas Pehrsson, Jarmo Reponen, Åke Walldius, Vivian Vimarlund. Nordic ehealth Indicators - Organisation of research, first results and the plan for the future. TemaNord 2013:522. Nordic Council of Ministers 2013
NeRN Review of existing indicators: Analysis of national ehealth surveys in the Nordic countries and the OECD model survey OECD Norway Denmark Sweden Finland 23.8.2013 Hannele Hyppönen, Arild Faxvaag, Heidi Gilstad, Gudrun Audur Hardardottir, Lars Jerlvall, Maarit Kangas, Sabine Koch, Christian Nøhr, Thomas Pehrsson, Jarmo Reponen, Åke Walldius, Vivian Vimarlund 7
What is currently being measured in the Nordic surveys/ in the OECD Indicator / measure Fi No DK SW OECD IT costs (investment/ maintenance budget) x x x Access to EHR Systems (proportion of organisations/clinicians/ patients having) x x x x Access to key Information generated within own org/ outside own org x x (x) x x GROUP 1 GROUP 2 GROUP 3 Access to info sharing functionalities (HIE) - proxy for System integration/ interoperability/ x x x x x Access to PHR functionalities x x (x) x x Access to telemedicine services x x IT support quality (UX = proportion of clinicians experiencing) x x IT system quality (e.g. reliability, down-time) (UX) x x Most challenging/ successful aspects of information systems (UX) x x x Information quality (UX) x x Intensity of use of EHR system/ information types / HIE/ PHR x x x x x Usability (UX) x x x Benefits (general) (UX) x x professional development support (UX) x x x Productivity/ efficiency gains (e.g. avoidance of duplicate tests) x x x Support for collaboration/ care continuity (UX) x x x Patient safety (several variables) x x Patient centredness (UX) x x x 23.8.2013 Hannele Hyppönen, Arild Faxvaag, Heidi Gilstad, Gudrun Audur Hardardottir, Lars Jerlvall, Maarit Kangas, Sabine Koch, Christian Nøhr, Thomas Pehrsson, Jarmo Reponen, Åke Walldius, Vivian Vimarlund 8
Nordic session today Examples from Iceland, Norway, Denmark and Finland show how citizen-centered services are built upon a national infrastucture. The cases are presented by actors who are involved in national implementation of ehealth strategies. The presentations give a nice insight of national architecture, required legal changes and practical examples of services, both to professionals and citizens.