Harnessing digital for selfmanagement

Transcription

1 Harnessing digital for selfmanagement and recovery in psychosis Simon Bradstreet, Research Fellow & Trial Manager

2 This talk Introduce the EMPOWER App and approach Consider feasibility and wider experiences of digital in psychosis Study progress and getting involved control! Faramarz Hashemi flickr

3 What is EMPOWER? Supported mobile phone App: Early Warning Signs monitoring Informs early intervention Supports self management Stepped care response Nurse and peer supported

4 The App

5 Question time

6 Behind the scenes Responses compared to baseline No change Message generated Small change Targeted message generated Empower 17:32 Larger change Message generated Alert raised Suspicious thoughts are common. In one recent study, 70% of people said that they had, at some time, experienced the feeling that people were deliberately trying to harm them or upset them in some way and 80% felt strangers were looking at them critically.

7 Functions

8 But will people actually use it? 72% - 82% have mobile phone (Firth et al. 2016) Psychosis, mobile phones, paranoia, are you serious? People want to use Apps for monitoring (e.g. Ben-Zeev et al. 2016) and like doing so (e.g. Alvarez-Jimenez, 2014; Palmier- Claus et al. 2012)

9 But will people actually use it? Actual acceptability higher than hypothetical and peer support important (Berry et al. 2016) Very high acceptability in some studies: e.g. 80% over 3-months (Granholm et al. 2012) and 1 year (Spaniel et al. 2012) Overall we have found good levels of coherence and enthusiasm

10 But will people actually use it? Conclusions: Although small, the current published literature demonstrates strong evidence for the feasibility of using smartphones to enhance the care of people with schizophrenia. High rates of engagement and satisfaction with a broad range of apps suggest the nascent potential of this mobile technology. However, there remains limited data on the efficacy of such interventions. Firth & Torus, 2015

11 The research Phase 1: qualitative work Phase 2: Cluster Randomised Controlled Trial: 6 community teams NHS Greater Glasgow and Clyde 2 teams in Melbourne Late summer start

12 Find out more

13 References Alvarez-Jimenez, M., Alcazar-Corcoles, M. A., González-Blanch, C., Bendall, S., McGorry, P. D., & Gleeson, J. F. (2014). Online, social media and mobile technologies for psychosis treatment: A systematic review on novel user-led interventions. Schizophrenia Research, 156(1), Ben-Zeev, D., Scherer, E. A., Gottlieb, J. D., Rotondi, A. J., Brunette, M. F., Achtyes, E. D., Kane, J. M. (2016). mhealth for Schizophrenia: Patient Engagement With a Mobile Phone Intervention Following Hospital Discharge. JMIR Mental Health, 3(3), e34. Firth, J., Cotter, J., Torous, J., Bucci, S., Firth, J. A., & Yung, A. R. (2015). Mobile Phone Ownership and Endorsement of mhealth Among People With Psychosis: A Meta-analysis of Cross-sectional Studies. Schizophrenia Bulletin, sbv Firth, J., & Torous, J. (2015). Smartphone Apps for Schizophrenia: A Systematic Review. JMIR mhealth and uhealth, 3(4), e Palmier-Claus, et al. (2012). The feasibility and validity of ambulatory self-report of psychotic symptoms using a smartphone software application. BMC Psychiatry, 12(1),