Access EMR Data for Research
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1 Access EMR Data for Research Srikar Chamala, PhD Clinical Assistant Professor Director of Biomedical Informatics (Dept. of Pathology) Univ. of Florida Dept. of Pathology, Immunology, and Laboratory Medicine UF Health Pathology Laboratories Dept. of Health Outcomes and Policy
2 Outline UF Health Electronic Health Data Architecture Overview Challenges Data Elements SAP Business Objects/Clarity Reports Integrated Data Repository (i2b2 & Custom) OneFlorida Clinical Research Consortium Getting Assistance
3 Epic s data warehouse Star schema relational SQL data warehouse Can integrate with other data sources like SQL databases, flat files, etc. UF Health Electronic Health Data Architecture Decision support service Enterprise information management Comes with SAP Webi a Business Intelligence reporting tool Can integrate with other data sources like SQL databases, flat files, etc. A large-scale database that collects and organizes information from across UF Health s clinical and research enterprises. Caboodle SAP Business Objects Integrated Data Repository (IDR) UF Health Information Technology EpicCare Hyperspace Patient-centered electronic health record Chronicles Cache Reporting workbench Real-time Operational Reporting No-SQL database KB SQL language Clarity SQL Server Clarity Reporting / Enterprise Reporting Most of the Chronicles data is pushed here Snowflake schema relational SQL data warehouse One day old data
4 Challenges Data Elements What data elements are needed? Translating research data elements to clinical data elements Experimental Pathologists May have most difficult time Collaborate/consult a clinician/pathologist Where are the required data elements located in EMR databases? Epic Clarity / IDR / SAP BO / i2b2 etc. Collaborate with biomedical/clinical informaticist Understanding the quality and limitations of the query used to pull the data? Collaborate with clinician/pathologist and biomedical/clinical informaticist
5 Clinicians/Pathologists - SAP Business Objects/Clarity Reports Epic s data warehouse Star schema relational SQL data warehouse Can integrate with other data sources like SQL databases, flat files, etc. Decision support service Enterprise information management Comes with SAP Webi a Business Intelligence reporting tool Can integrate with other data sources like SQL databases, flat files, etc. A large-scale database that collects and organizes information from across UF Health s clinical and research enterprises. Caboodle SAP Business Objects Integrated Data Repository (IDR) UF Health Information Technology EpicCare Hyperspace Patient-centered electronic health record Chronicles Cache Reporting workbench Real-time Operational Reporting No-SQL database KB SQL language Clarity SQL Server Clarity Reporting / Enterprise Reporting Most of the Chronicles data is pushed here Snowflake schema relational SQL data warehouse One day old data
6 Accessing Integrated Data Repository (IDR) for Research Researchers can access IDR data in two ways i2b2 Cohort Discovery tool Data Support / IRB Data Requests
7 i2b2: Informatics for Integrating Biology and the Bedside Built on IDR i2b2 Cohort Discovery tool that can be used to ask these questions and more How many patients in the health system have particular ailments? How many meet study eligibility criteria? How many have agreed to be contacted for research studies? Etc.. Office hours for i2b2 assistance
8 Custom Data Requests i2b2 cohort data / custom data - apply for IRB approval to obtain detailed data from the IDR for further research analysis You will work with IDR team to obtain identifiable/de-identified datasets Data Retrieval From IDR is not free CTSI Vouchers
9 OneFlorida Clinical Research Consortium Fee Structure Lot of Data understand the quality steps involved in acquiring the data from various institutions.
10 CTSI Research Project Navigator will help, Bob Kolb - kolbhr@ufl.edu Classify your study between QA/QI vs Research IRB process IRB / Costs / Guidance CTSI Vouchers Data Retrieval From EMR Repositories like IDR is not free Get in touch with right informatics people for retrieving data (IDR Team) Biomedical Informatics team at Dept. of Pathology, Immunology and Laboratory Medicine Srikar Chamala, Ph.D. Director Biomedical Informatics; schamala@ufl.edu.
11 Thank you!! Q&A
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