Data Set Specification Reference Code tables
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1 Data Set Specification Reference Code tables ANZDATA selection of metadata items. Created: 1 July 2016 Page 1 of 50
2 Australia and New Zealand Dialysis and Transplant Registry 2016 We have made all reasonable efforts to identify and label data collected by Australian and New Zealand Renal and Transplant Units, who collectively are the rightful owners of their data. The Registry act as Custodian of the data and the analyses and reports generated from the data collected. You may distribute this work. However, you must attribute the ANZDATA Registry as the copyright holder of the work in compliance with our attribution policy available at Enquiries relating to copyright should be addressed to the Chair of Executive, ANZDATA Registry, South Australian Medical and Research Institute, (SAHMRI), PO Box 11060, Adelaide SA Any enquiries about or comments on this publication should be directed to: Registry General Manager ANZDATA Registry South Australian Medical and Research Institute PO Box Adelaide SA Phone: Fax: ANZDATA selection of metadata items. Created: 1 July 2016 Page 2 of 50
3 Australia and New Zealand Living Kidney Donation Reference Code tables Identifying and definitional attributes Metadata item type: Registry Identifier: DSS type: Scope: Data Set Specifications ANZDATA Data Set Specification (DSS) The Australia and New Zealand Dialysis and Transplant Registry have been in operation since its inception in 1971 and stores data from The purpose of the Registry is to record, analyse and report on outcomes of treatment of those people with end stage kidney disease receiving renal replacement therapy treatment and of those such as haemodialysis, peritoneal dialysis and kidney transplantation. Relational attributes Related Metadata references:: See also Australia and New Zealand Organ Donation (ANZOD) Data Dictionary See also Australia and New Zealand Living Kidney Donor (ANZLKD) Data Dictionary Accountability attributes Organisation/s responsible for providing data: Accountability: Australian and New Zealand Renal and Transplant Units ANZDATA Collection and usage attributes Computation: description: Data entered into the ANZDATA Registry are used to calculate various statistical indicators such as incidence and prevalence of end stage kidney disease treatment; patient outcome measures such as patient, technique and graft survival; and rates of adverse events such as peritonitis and mortality. Comments: Data elements and statistical analyses have evolved over time and where indicated the status of a data element describes whether it is in current use or inactive. ANZDATA selection of metadata items. Created: 1 July 2016 Page 3 of 50
4 List of metadata items Australia and New Zealand Living Kidney Donation Reference Code tables... 3 Code Adverse Event Site... 5 Code Anzdata Cause Of Death... 7 Code Country Of Birth Code Further Adverse Events Code LK Diabetes Type Code LK Follow up Status Code LK Organism Code Measured GFR Code Operation Approach Code Operation Type Code Racial Ethnic Origin Code Relationship to Recipient Code Smoking Code Vascular Event Code Which Kidney Code Yes No Code Yes No Unknown ANZDATA selection of metadata items. Created: 1 July 2016 Page 4 of 50
5 Code Adverse Event Site Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeAdverseEventSite CDAdverse Active This data cluster contains data element codes to describe the data element of AdverseInfectionSiteCode in LKDonorDetails data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Mandatory Nvarchar(50) 6 SequenceNo Mandatory Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 5 of 50
6 Data Set Code L O U W Description Lung Other (Specify) Urine Wound Collection and usage attributes Guide for use: Data is identified to best describe the type of indication. Implementation start date 01/01/2004 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 6 of 50
7 Code Anzdata Cause Of Death Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeAnzdataCauseOfDeath CDDeath Active This data cluster contains data element codes to describe the data element of CauseOfDeathCode in LKYearlyFollowup data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 7 of 50
8 Data Set Code Description 10 Myocardial Ischaemia (Presumed) 11 Myocardial Ischaemia And Infarction 12 Pulmonary Oedema 13 Hyperkalaemia 14 Haemorrhagic Pericarditis 15 Hypertensive Cardiac Failure 16 Cardiac Arrest-Cause Uncertain 17 Other Causes Cardiac Failure (Specify) 21 Pulmonary Embolus 22 Cerebrovascular Accident 23 Gastrointestinal Haemorrhage 24 Haemorrhage From Dialysis Access Site 25 Haemorrhage From Transplant Artery 26 Aortic Aneurysm-Rupture 27 Haemorrhage From Elsewhere (Specify) 28 Bowel Infarction 40 Withdrawal-Psycho Social Reasons 41 Patient Refused Treatment (Specify) 42 Suicide 43 Therapy Ceased Other Reasons (Specify) 44 Accidental Death (All Causes) Specify 45 Withdrawal-Cardiovascular Comorbid Conditions 46 Withdrawal-Cerebrovascular Comorbid Conditions 47 Withdrawal-Peripheral Vascular Comorbid Conditions 48 Withdrawal-Malignancy 49 Withdrawal-Dialysis Access Difficulties ANZDATA selection of metadata items. Created: 1 July 2016 Page 8 of 50
9 Code Description 50 Hepatic Failure (Specify) 51 Uraemia Caused by Graft Failure 52 Pancreatitis 53 Bone Marrow Depression 54 Cachexia 55 Unknown 56 Malignant Disease 57 Perforation Abdominal Viscus 58 Dialysis Dementia (Aluminium) 59 Other (Specify) 60 Immunodeficiency Due to Viral Infection (Specify) 61 Chronic Respiratory Failure 62 Sclerosing Peritonitis 311 Cns Infection (Specify) -Bacterial 312 Cns Infection (Specify) -Viral 313 Cns Infection (Specify) -Fungal 314 Cns Infection (Specify) -Protozoa 315 Cns Infection (Specify) -Other 321 Lung Infection (Specify) -Bacterial 322 Lung Infection (Specify) -Viral 323 Lung Infection (Specify) -Fungal 324 Lung Infection (Specify) -Protozoa 325 Lung Infection (Specify) -Other 331 Urinary Tract Infection (Specify) -Bacterial 332 Urinary Tract Infection (Specify) -Viral 333 Urinary Tract Infection (Specify) -Fungal 334 Urinary Tract Infection (Specify) -Protozoa 335 Urinary Tract Infection (Specify) -Other 341 Wound Infection (Specify) -Bacterial ANZDATA selection of metadata items. Created: 1 July 2016 Page 9 of 50
10 342 Wound Infection (Specify) -Viral 343 Wound Infection (Specify) -Fungal 344 Wound Infection (Specify) -Protozoa 345 Wound Infection (Specify) -Other 351 Shunt Infection (Specify) -Bacterial 352 Shunt Infection (Specify) -Viral 353 Shunt Infection (Specify) -Fungal 354 Shunt Infection (Specify) -Protozoa 355 Shunt Infection (Specify) -Other 361 Peritonitis (Specify) -Bacterial 362 Peritonitis (Specify) -Viral 363 Peritonitis (Specify) -Fungal 364 Peritonitis (Specify) -Protozoa 365 Peritonitis (Specify) -Other 371 Septicaemia (Specify) -Bacterial 372 Septicaemia (Specify) -Viral 373 Septicaemia (Specify) -Fungal 374 Septicaemia (Specify) -Protozoa 375 Septicaemia (Specify) -Other 381 Liver (Specify) -Bacterial 382 Liver (Specify) -Viral 383 Liver (Specify) -Fungal 384 Liver (Specify) -Protozoa 385 Liver (Specify) -Other 391 Other Site (Specify)-Bacterial 392 Other Site (Specify)-Viral 393 Other Site (Specify)-Fungal 394 Other Site (Specify)-Protozoa 395 Other Site (Specify)-Other 341 Wound Infection (Specify) -Bacterial ANZDATA selection of metadata items. Created: 1 July 2016 Page 10 of 50
11 342 Wound Infection (Specify) -Viral 343 Wound Infection (Specify) -Fungal 344 Wound Infection (Specify) -Protozoa 345 Wound Infection (Specify) -Other 351 Shunt Infection (Specify) -Bacterial 352 Shunt Infection (Specify) -Viral 353 Shunt Infection (Specify) -Fungal 354 Shunt Infection (Specify) -Protozoa 355 Shunt Infection (Specify) -Other 361 Peritonitis (Specify) -Bacterial 362 Peritonitis (Specify) -Viral 363 Peritonitis (Specify) -Fungal 364 Peritonitis (Specify) -Protozoa 365 Peritonitis (Specify) -Other 371 Septicaemia (Specify) -Bacterial 372 Septicaemia (Specify) -Viral 373 Septicaemia (Specify) -Fungal 374 Septicaemia (Specify) -Protozoa 375 Septicaemia (Specify) -Other 381 Liver (Specify) -Bacterial 382 Liver (Specify) -Viral 383 Liver (Specify) -Fungal 384 Liver (Specify) -Protozoa 385 Liver (Specify) -Other 391 Other Site (Specify)-Bacterial 392 Other Site (Specify)-Viral 393 Other Site (Specify)-Fungal 394 Other Site (Specify)-Protozoa 395 Other Site (Specify)-Other ANZDATA selection of metadata items. Created: 1 July 2016 Page 11 of 50
12 Collection and usage attributes Guide for use: Data is identified to best describe the type of acute rejection treatment. Implementation start date 01/04/1993 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 12 of 50
13 Code Country Of Birth Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeCountryOfBirth CDCountry Active This data cluster contains data element codes to describe the data element of BirthCountryCode in LKDonorDetails data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 13 of 50
14 Data Set Code Description 10 Australia 11 New Zealand 12 Fiji 13 Western Samoa 14 Samoa 15 Papua New Guinea 16 Indonesia 17 Tonga 18 Bali 19 Cook Islands 20 Timor 21 East Timor 22 New Caledonia 23 Nauru 24 Vanuatu 25 Niue 26 Solomon Islands 27 Noumea 28 Tokelau 29 Wallis Island 30 Norfolk Island 31 Christmas Island 32 Cocos Islands 33 Tahiti 34 Tobalanah 35 Rotuma Island ANZDATA selection of metadata items. Created: 1 July 2016 Page 14 of 50
15 36 Atiu Island 37 Tuvalu (Ellice) Island 38 Pitcairn Island 39 Thursday Island 40 England 41 Scotland 42 Wales 43 United Kingdom 44 Portugal 45 Spain 46 France 47 Norway 48 Switzerland 49 Italy 50 Germany 51 Sweden 52 Holland 53 Latvia 54 Estonia 55 Denmark 56 Ireland 57 Austria 58 Belgium 59 Finland 60 Lithuania 61 Sicily 62 Channel Isles 63 Iceland 64 Liechtenstein 67 Maldova ANZDATA selection of metadata items. Created: 1 July 2016 Page 15 of 50
16 68 Slovakia 69 Slovenia 70 Czechoslovakia 71 Greek Macedonia 72 Poland 73 Hungary 74 Yugoslavia/States 75 Russia 76 Bulgaria 77 Ukraine 78 Romania 79 Armenia 80 Albania 81 Afghanistan 82 Assyria 83 Siberia 84 Kazakhstan 85 Uzbechistan 86 Serbia-Montenegro 87 Croatia 88 Macedonia (Fyr) 89 Bosnia-Herzegovina 90 Greece 91 Lebanon 92 Syria 93 Iraq 94 Iran 95 Libya 96 Malta 97 Egypt ANZDATA selection of metadata items. Created: 1 July 2016 Page 16 of 50
17 98 Palestine 99 Turkey 100 Cyprus 101 Israel 102 Kuwait 103 Saudi Arabia 104 Jordan 105 United Arab Emirates 109 Nepal 110 China 111 Taiwan 112 Hong Kong 113 Cambodia 114 Vietnam 115 Korea 116 Japan 117 India 118 Pakistan 119 Malaysia 120 Singapore 121 Philippines 122 Bangladesh 123 Laos 124 Sri Lanka 125 Thailand 126 Burma 127 Brunei 128 Borneo 129 Macau 130 South Korea ANZDATA selection of metadata items. Created: 1 July 2016 Page 17 of 50
18 131 Bhutan 135 Cuba 136 Surinam 137 Mexico 138 Guyana 139 Dominican Republic 140 United States 141 Chile 142 Columbia 143 Canada 144 Uruguay 145 Ecuador 146 Brazil 147 Argentina 148 Jamaica 149 El Salvador 150 South America 151 Bolivia 152 Peru 153 Nicaragua 154 Bermuda 155 Martinique 156 Paraguay 157 West Indies 158 Barbados 159 Guatemala 160 South Africa 161 Angola 162 Uganda 163 Mauritius ANZDATA selection of metadata items. Created: 1 July 2016 Page 18 of 50
19 164 Ghana 165 Zimbabwe 166 Seychelles 167 Zambia 168 Sudan 169 Eritrea 171 Kenya 172 Somalia 173 Morocco 174 Liberia 175 Malawi 176 Tanzania 177 Nigeria 178 West Africa 179 Ethiopia 180 Algeria 181 Niger 191 Ocean Island 192 Kiribati 999 Other (Specify) Collection and usage attributes Guide for use: Data is identified to best describe the type of acute rejection treatment. Implementation start date 01/04/1993 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 19 of 50
20 Code Further Adverse Events Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeFurtherAdverEvents Active This data cluster contains data element codes to describe the data element of FurtherAdverseEventCode in LKDonorDetails data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 20 of 50
21 Data Set Code Description A D H N O P Ami Deep Vein Thrombosis Haemorrhage (Requiring Transfusion) None Other (Specify) Pulmonary Embolus Collection and usage attributes Guide for use: Data is identified to best describe the time period. Implementation start date 01/04/2004 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 21 of 50
22 Code LK Diabetes Type Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeLKDiabeteseType Active This data cluster contains data element codes to describe the data element of DiabetesCode in LKDonorDetails data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 22 of 50
23 Data Set Code Description G N O P Q Gestational Diabetes No Type 1 - Insulin Dependent Type 2 - Non-Insulin Requiring Type 2 - Insulin Requiring Collection and usage attributes Guide for use: Data is identified to best describe the time period. Implementation start date 01/04/2004 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 23 of 50
24 Code LK Follow up Status Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeLKFollowUpStatus Active This data cluster contains data element codes to describe the data element of FollowUpstatUpCode in LKYearlyFollowUp data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 24 of 50
25 Data Set Code Description D L N R W Deceased Lost to Follow Up No Response Response Withdrawn Collection and usage attributes Guide for use: Data is identified to best describe the time period. Implementation start date 01/01/2004 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 25 of 50
26 Code LK Organism Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeLKOrganism Active This data cluster contains data element codes to describe the data element of OrganismCode in LKDonorDetails data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 26 of 50
27 Data Set Code Description E K N O T E.Coli Klebsiella Not Isolated Other (Specify) Enterococcus Collection and usage attributes Guide for use: Data is identified to best describe the time period. Implementation start date 01/01/2004 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 27 of 50
28 Code Measured GFR Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeMeasuredGFR Active This data cluster contains data element codes to describe the data element of MeasuredGFRMethodCode in LKDonorDetails data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 28 of 50
29 Data Set Code Description C I O R 24 Hour Creatinine Clearance Ioxehol/Iothalamate Other (Specify) Radio Labelled (Dtpa/Edta) Collection and usage attributes Guide for use: Data is identified to best describe the time period. Implementation start date 01/01/2004 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 29 of 50
30 Code Operation Approach Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeOperation Approach Active This data cluster contains data element codes to describe the data element of ApproachCode in LKDonorDetails data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 30 of 50
31 Data Set Code Description E Extraperitoneal R Retroperitoneal T Transperitoneal Collection and usage attributes Guide for use: Implementation start date 01/01/2004 Comments: Data is identified to best describe the time period. Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 31 of 50
32 Code Operation Type Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeOperationType CDOperation Active This data cluster contains data element codes to describe the data element of OperationTypeCode in LKDonorDetails data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 32 of 50
33 Data Set Code Description H Hand Assisted Laparoscopic L Laparoscopic O Open Collection and usage attributes Guide for use: Implementation start date 01/01/2004 Comments: Data is identified to best describe the time period. Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 33 of 50
34 Code Racial Ethnic Origin Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeRacialEthnicOrigin CDRace Active This data cluster contains data element codes to describe the data element of EthnicOriginCode in LKDonorDetails data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 34 of 50
35 Data Set Code Description 0 Response Unidentifiable 1 Not Stated 1101 Oceanian - Australian 1102 Oceanian - Australian Aboriginal 1103 Oceanian - Australian South Sea Islander 1104 Oceanian - Torres Strait Islander 1201 Oceanian - New Zealand Maori 1202 Oceanian - New Zealand European 1300 Oceanian - Melanesian And Papuan (Specify) 1400 Oceanian - Micronesian (Specify) 1500 Oceanian - Polynesian (Specify) 1501 Cook Islander 1502 Fijian 1503 Niuean 1504 Samoan 1505 Tongan 1508 Tokelauan 2000 North-West European (Specify) 3000 Southern and Eastern European (Specify) 3103 Southern and Eastern European - Italian 3205 Southern and Eastern European - Greek 4000 North African and Middle Eastern (Specify) 4100 North African and Middle Eastern - Arab (Specify) 4907 North African and Middle Eastern - Turkish 5000 South-East Asian (Specify) 5107 South-East Asian - Vietnamese ANZDATA selection of metadata items. Created: 1 July 2016 Page 35 of 50
36 Code Description 5201 South-East Asian - Filipino 5202 South-East Asian - Indonesian 5205 South East Asian - Malay 6000 North - East Asian (Specify) 6101 North - East Asian - Chinese 7000 Southern and Central Asian (Specify) 7100 Southern Asian, nfd 7106 Southern and Central Asian - Indian 7200 Central Asian, nfd 8100 North American (Specify) 8105 Hispanic North American 8200 South American (Specify) 8300 Central American (Specify) 8400 Caribbean Islander (Specify) 9000 Sub-Saharan African (Specify) 9999 Other (Specify) Collection and usage attributes Guide for use: Implementation start date 01/01/2004 Comments: Data is identified to best describe the time period. Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 36 of 50
37 Code Relationship to Recipient Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeRelationshipToRecipient CDSource Active This data cluster contains data element codes to describe the data element of RecipientRelationshipCode in LKDonorDetails data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 37 of 50
38 Data Set Code Description Alternative Description Code Description Deceased 100 Deceased Related Genetically 200 Sister Related Genetically 201 Brother Related Genetically 202 Mother Related Genetically 203 Father Related Genetically 204 Monzygotic (Identical Twin girl) Related Genetically 205 Monzygotic (Identical Twin boy) Related Genetically 206 Dizygotic (Non-Identical Twin Girl) Related Genetically 207 Dizygotic (Non-Identical Twin boy) Related Genetically 208 Daughter Related Genetically 209 Son Related Genetically 210 Grandmother Related Genetically 211 Grandfather Related Genetically 212 Cousin Related Genetically 213 Niece Related Genetically 214 Nephew Related Genetically 215 Aunt Related Genetically 216 Uncle Related Genetically 217 Other related (Genetically - specify) Related Emotionally 300 Wife Related Emotionally 301 Husband Related Emotionally 302 Partner Related Emotionally 303 Fiance / Fiancee Related Emotionally 304 Mother-in-law Related Emotionally ANZDATA selection of metadata items. Created: 1 July 2016 Page 38 of 50
39 Code Description Alternative Description 305 Father-in-law Related Emotionally 306 Stepmother Related Emotionally 307 Stepfather Related Emotionally 308 Stepsister Related Emotionally 309 Stepbrother Related Emotionally 310 Sister-in-law Related Emotionally 311 Brother-in-law Related Emotionally 312 Daughter-in-law Related Emotionally 313 Son-in-law Related Emotionally 314 Stepdaughter Related Emotionally 315 Stepson Related Emotionally 316 Friend Related Emotionally 317 Other related (Emotionally - specify) Unrelated 401 Non-directed, waiting list Unrelated 402 Non-directed, kidney exchange Unrelated 403 Directed kidney exchange Unrelated 404 Pathological Unrelated 405 Other unrelated (specify) Deceased Collection and usage attributes Guide for use: Implementation start date 01/01/2004 Comments: Data is identified to best describe the time period. Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 39 of 50
40 Code Smoking Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeSmoking Active This data cluster contains data element codes to describe the data element of SmokingCode in LKDonorDetails data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 40 of 50
41 Data Set Code Description C F N U Current Former Never Unknown Collection and usage attributes Guide for use: Data is identified to best describe the time period. Implementation start date 01/01/2004 Comments: Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 41 of 50
42 Code Vascular Event Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeVascularEvent CDVascular Active This data cluster contains data element codes to describe the data element of VascularEventCode, VascularEvent1Code and VascularEvent2Code in LKYearlyFollowUp data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 42 of 50
43 Data Set Code Description A Ami C Cabg G Angioplasty M Amputation O Other (Specify) S Stroke T Tia Collection and usage attributes Guide for use: Implementation start date 01/01/2004 Comments: Data is identified to best describe the time period. Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 43 of 50
44 Code Which Kidney Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: - Registration status: Description: Data set specifications Data element code CodeWhichKidney Active This data cluster contains data element codes to describe the data element of WhichKidneyCode in LKDonorDetails data cluster. Source or reference attributes Submitting Organisation: ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 44 of 50
45 Data Set Code Description L Left R Right Collection and usage attributes Guide for use: Implementation start date 01/01/2004 Comments: Data is identified to best describe the time period. Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 45 of 50
46 Code Yes No Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeYesNo Active This data cluster contains data element codes to describe the data elements of AdverseInfectionCode, 'GlucoseToleranceTestCode, HypertensionCode, UrineCultureCode, UrineInfectionCode, in LKDonorDetails and DonorAliveCode, HypertensionCode, PregnancyCode, RenalProblemsCode, VascularEventCode in LKYearlyFollowUp data clusters. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 46 of 50
47 Data Set Code Description N No Y Yes Collection and usage attributes Guide for use: Implementation start date 01/01/2004 Comments: Data is identified to best describe the time period. Fields for internal use only SystemCode, SequenceNo, CreatedByUser, CreatedDate, ModifiedByUser, ModifiedDate ANZDATA selection of metadata items. Created: 1 July 2016 Page 47 of 50
48 Code Yes No Unknown Identifying and definitional attributes Metadata item type: DSS type: Table name: Historical table name: Registration status: Description: Source or reference attributes Submitting Organisation: Data set specifications Data element code CodeYesNoUnKnown CDOperation Active This data cluster contains data element codes to describe the data element of FamilyHistoryDiabetesCode in LKDonorDetails data cluster. ANZDATA Registry Metadata items in this Data Set Specifications Item Metadata item Obligation Data Type 1 Code Mandatory Nvarchar(10) 2 Description Mandatory Nvarchar(250) 3 Alternative Description Optional Nvarchar(250) 4 ActiveFlag Mandatory Bit 5 SystemCode Optional Nvarchar(50) 6 SequenceNo Optional Integer 7 CreatedByUser Mandatory Nvarchar(25) 8 CreatedDate Mandatory Date 9 ModifiedByUser Conditional Nvarchar(25) 10 ModifiedDate Conditional Date ANZDATA selection of metadata items. Created: 1 July 2016 Page 48 of 50
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50 ANZDATA selection of metadata items. Created: 1 July 2016 Page 50 of 50
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