Guide to Creating a Study Website
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- Clementine Parker
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1 Guide to Creating a Study Website
2 Guide Purpose Offer direction on how to develop research study websites. Provide recommendations on design and usability to create a seamless and engaging digital experience. 2
3 How to Use Study Websites Recruit potential participants by providing an online resource to learn more about the study and connect with study teams. Keep study participants engaged by providing updates and results on the website. 3
4 Creating Successful Study Websites User Consider possible visual, cognitive and physical impairments due to aging and/or Parkinson s symptoms that could prevent people from using the website. Feel Follow usability and design best practices; technical issues can turn users away from the website and, ultimately, the study. Look Usability Remember to gain ethical review board approval on your website content prior to launch. Tips on developing, designing and formatting study websites are provided in the following slides. 4
5 Creating a Study Website Develop your own website or use a website builder service, such as Wix, WordPress or Squarespace. Many are free or low cost. Select a domain name, or web address, that is short, descriptive and memorable; for example, a suitable domain name for XYZ Study would be Consider reserving both the.com and.org versions of your chosen web address or similar domain names (e.g., and 5
6 Navigation Use a consistent layout and create an easy-to-use navigation bar that lives at the top of all pages. Avoid drop-down menus that require precise movements to select menu items. Avoid using double mouse clicks for navigation. Underline hyperlinks that change color once clicked. Minimize extensive scrolling. 6
7 Writing Style Use active voice and address users in the second person (i.e., you ). Keep information concise, minimize the use of scientific jargon and define unfamiliar terms. A phone call was made by Adam. Adam made a phone call. PASSIVE ACTIVE Provide simple and clear actions steps; for example, Call a trial site near you to schedule a visit. Obtain ethical review board approval on all study information included on the website. The footballs will be kicked by the boys. The boys will kick the footballs. PASSIVE ACTIVE 7
8 Content Organization Organize and group information in a manner that is simplest for potential participants to learn about the study (i.e., explain study rationale before outlining study procedures). Use clear and informative page headings; for example, the Who is Eligible page should contain eligibility criteria. Break information up into short sections, each no more than five lines long. ABOUT THE STUDY WHO IS ELIGIBLE WHAT IS INVOLVED MEET THE STUDY TEAM SITE LOCATIONS AND CONTACT INFO Prioritize key information first. Many web users never read beyond content that is immediately visible on the screen. 8
9 Readability Use Sans Serif font types, such as Helvetica, which are easier to read on digital devices. Use 12 point or larger font sizes, and left justify text. Use margins of at least 1.5 inches. Avoid using all CAPITALIZED words or italics. Sentence case ALL CAPS Italics Ensure that text and background colors have good contrast. 9
10 Multimedia Consider including images, video or audio to make your website more engaging. PREVIOUS TRACK NEXT TRACK VOLUME CONTROL SHOW PLAYLIST Use relevant images to illustrate written content. Use video and audio clips to explain the study or procedures; clips should have prominent control bars and captions for hearing impaired users. PLAY/PAUSE PLAYBACK SLIDER FULLSCREEN DISPLAY Consider adding online forms, such as prescreening tests or contact forms, with large text fields. 10
11 Promote Your Study Website Print materials Include a web link on all study materials, such as flyers, to recruit participants and connect them with the study team. Social media Include a web link in a Tweet or Facebook post so interested individuals can learn more about the study. 11
12 Additional Resources See the Study Website Sample in The Michael J. Fox Foundation s Recruitment and Retention Toolkit for guidance on website content. 12
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