Introduction to Chapter 55
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1 Introduction to Chapter 55 Thomas Land, PhD Director, Special Analytic Projects Office of Population Health Massachusetts Department of Public Health November 6, 2017
2 State of DPH Data in January data mostly unlinked systems Access to data guided by manual IRB/24A process Few applicants understand data access rules No audit of actual usage No direct public access to data Little ability to answer complex public health questions
3 DPH Vision for a Virtual Data Warehouse An accessible, secure, and timely linkage of data that supports MA public health program planning and evaluation, as well as research and collaboration with external partners, without sharing the original datasets. - 3/17/2015
4 Chapter 55 Legislation (August 2015) Signed into law in August 2015 Requires a comprehensive report to the state Legislature and cross-agency collaboration to examine trends in opioid-related deaths and address 7 specific questions Specifies major data sets across government Overcomes legal barriers for use of some data 4
5 Linking Data: The Spine
6 Chapter 55: Secure Data Access PSI #2 & Analytic PSI #3 & Analytic PSI #4 & Analytic PSI #5 & Analytic additional data PSI #N & Analytic PSI #1 & #2 PSI #1 & #3 PSI #1 & #4 PSI #1 & #5 additional data PSI #1 & #N PSI #1 APCD SPINE PSI #1 PSI = Project Specific Identifier Enterprise SAS or other software (Fixed or Cloud-based servers) Chapter 55 Privacy Shield: Authorized users only, no write access, analysts cannot see data, automatic cell suppression, delete all temporary work files, full auditability of all data operations additional machines N 6
7 Chapter 55: Secure Data Handling RAW Data Set #5 Store PSI file in common folder with all other PSI (encrypted) #5 Store analytic file in separate folder (encrypted) #1 Split file between identifiers and analytic data #4 Hand deliver PSI file and analytic file to DATA (encrypted) Legend PSI = Project Specific Identifier LEADER = Project leader CONNECTOR = Separate Linkage Agent DATA = Secure Data Center SPINE = Large data set PSI + Identifiers (encrypted) PSI + Analytic Data (no identifiers / encrypted) #2 CONNECTOR Links identifier file with SPINE #3 LEAD wipes drive with PSI and identifiers PSI + Identifiers SPINE SPINE PSI + Analytic PSI (send to LEAD encrypted)
8 Chapter 55 Data Mapping Data Sources Public Health Medical Claims & Hospital MassHealth Mental Health Public Safety Jails & Prisons Other Law Enforcement DHCD (Homelessness) Veterans Services Service Flags Aggregate (Town, Zip, etc.) Community Level Data Chapter 55 Data Structure PDMP BSAS Treatment MATRIS (EMS) Birth Records Cancer Registry Death Records APCD Spine Toxicology OCME Intake State Police Opioid MA Prisons MA Jails System Attributes Linkage at individual level Longitudinal (5 year history) Data encrypted in transit & at rest Limited data sets unlinked at rest Linking and analytics on the fly No residual files after query completed Analysts can t see data Automatic cell suppression Service Indicator Flags Children & Families Transitional Assistance NARCAN Distribution Town & Zip Census Data Needle Exchange Medical Claims MassHealth Youth Services Dept Dev Services Commission for Blind Hospital and ED Veterans Services DMH DHCD I.C.E. Measures Drug Seizure Data MDPHnet Depression
9 Chapter 55: Partners Coming Together Academic Brandeis University Boston University Brown University Harvard Medical School Harvard School of Public Health Massachusetts College of Pharmacy and Health Sciences Massachusetts Institute of Technology Northeastern University Tufts University University of Massachusetts Amherst University of Massachusetts Boston University of Massachusetts Medical School Hospitals & Private Industry Baystate Health Beth Israel Deaconess Medical Center Boston Medical Center Brigham & Women s Hospital Children s Hospital GE IBM Liberty Mutual Massachusetts General Hospital Massachusetts League of Community Health Centers McKinsey & Company The MITRE Corporation Partners Healthcare PwC Rand Corporation State and Federal Government Agencies Boston Public Health Commission Center for Health Information and Analysis Department of Housing and Community Development Department of Mental Health Department of Correction Department of Public Health Executive Office of Health and Human Services Executive Office of Public Safety and Security Federal Bureau of Investigation High Intensity Drug Trafficking Area (NE) Health Policy Commission Massachusetts Sheriffs Association MassIT Office of the Chief Medical Examiner State Auditor s Office 9
10 Chapter 55 Progress 1 st report September 2016 (fatal overdose) 7 statutorily mandated questions 4 additional analytic projects 2 nd report August 2017 (fatal and nonfatal overdose) 34 active projects (internal and external to DPH) 13 sections covering baseline statistics, timelines and influences, and at risk populations Future reports public health priorities set by the Commissioner 10
11 Thank You Thomas Land, PhD Director, Special Analytic Projects Office of Population Health Massachusetts Department of Public Health 11
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